I have had this Illness since I was In my early teens, have felt a freak not normal broken like a crazy person labeled hypochondriac and as just being depressed. I have forgone many procedures which hurt, blood tests galore and been told they find nada!! In and out of hospitals with pains that took my feet from beneath me, my lungs had a form of collapsing 4 years ago told it was my asthma and so on so forth!!
I got my diagnosis finally this year which was followed by yay I know what it is boo the Gov and NHS suck!! and goodbye old me and hello this person I don't recognize getting used to that person and learning about her then to learning what could help. The day I found The CFS forum (chronicfatiguesyndromeforum.me.uk ) was the day I began my program to get ME/CFS into remission, with its many topics which I could relate to and research further experiment with things and believe me its trial and error!!
The site led me to Dr Myhills ( www.drmyhill.co.uk )site who is amazing but its just my opinion and all the things I do are for my own personal benefit. Her site explained the reaction my body was having and how it got there and ideas to help improve matters.
So far I have been following a Stone age diet and paleo but also included the candida diet rules, so no fruit for a while no sugar or sweet natural saps!! no yeast no wheat no dairy and yes I still do eat as many of my friends keep joking. I have got used to this now and like what I eat and look forward to adding fruit and potato ( but only twice a week for potato) in time for Xmas.
I have followed the supplements advised by Dr Myhill ( her advice is all free and she has a down loadable book!! how many experts give you that lol) and bought them and been on them a month or just after.
I pace and I don't have telly on or radio until my husband returns from work in the evening and I only have one vice and that's my IPhone when I check FB and The cfs Forum and Lush Ltd. I also take my self of to the bedroom and meditate in total quiet or with the mp3 that roger gave.
I have also been putting Apple cider vinegar on my salad to aid by stomach my IBS is a B**** but its getting there I also have bought the Kefir grains which is a good Pro biotic which can last for ever if looked after.
So....How am I going well I went from deteriorating towards complete bed boundness to feeling more alert the brain fog went from all day to just in the evenings and is getting better. The fatigue is being considerate and easing of quite considerably. My glands flare mildly and the throat only slight sore I think I am experiencing the end of the Die Off at the moment with the candida problem I have. I feel a lot more well and I'm a shocked as the next person. But This is whats been working for me but I do believe remission can be achieved you just need to find the right combination for you as an individual.
I'm happy to keep you updated of this, if you can find it useful and I truly hope everyone will find there way to Remission and that the NHS wakes up and smells the coffee.
Sending you all my love and hugs xx
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