Today is officially ME awareness week, as you may have guessed from the links I have been sharing ( again I am sorry if this has bugged anyone) and if you could share them I would appreciate it, to share and make the awareness of the illness a little more known. If not no worries x
I obviously have a personal reason for jumping on the ME band wagon, due to also being a ME sufferer - it was confirmed that I have had this since my child hood from a virus. Those that know me from school, you will probably remember that I was a serial part timer due to illness sickness - I was always on antibiotics. Those of you who have known me from a working perspective - also know that My attendance was a joke, I'm not under any illusion, I worked hard but I was always off ill and again on anti biotics.
December 2009 is when my life truly fell apart due to this illness - and July 2010 is when I was officially diagnosed after all them years. Unfortunately many doctors do not know anything about treating this illness and it does go undetected and fobbed off as to being many other illnesses.
My symptoms were - IBS - swollen tummy crippling pains, Asthma, Eczema, debilitating Fatigue, swollen glands around the body and painful nodes in my throat and cold and flu symptoms, heart palpitations, restless leg syndrome, anxiety, pale complexion with dark rings around my eyes, Candida, Coeliac disease, Lactose intolerant, deficiency in vitamins and mineral.
I have dealt with my ME with - Diet - a massive change avoiding sugar and processed as much as possible, Supplements, avoidance of certain foods and daily used chemicals and toxins, counselling, Meditation, and Pacing.
I am not perfect and fall of the wagon but I am determined and get straight back on the horse again and can say I'm feeling so much better, and its hard work but anything worth achieving in life is, so therefore I stick at it x
I'm not ashamed of this Illness although the stigma surrounding it is cruel - I hope people will educate them selves on the importance of food they put into there mouths and toxic products they use on there body - and I hope ME will be better understood and treated correctly, instead of saying exercise will fix it bollocks mate it makes it worse!!
This is what I posted today on facebook and Twitter, I feel I have freed myself by opening up to friends and family about my journey with this illness.
I really don't care what anyone thinks in a judgement way I have made a few people more aware - and if everyone did this there would be a better understanding of the illness, I would hope anyways. It feels good and I am happy with the way my life is going x
Last night me and Lee had a huge heart to heart about how we are coping with all the new stuff and old stuff going on in our lives, this really cleared the air and helps to see our way forward in the situation. It helps us to understand what we have said, for instance a sentence may annoy the other person and be missing a whole lot of explanation out of it, when you explain the meaning behind what you are saying no to or yes to they can begin to see the whole picture to make a decision, rather then dismissing it immediately without thought or understanding.
Mum has to go into hospital today for an operation tomorrow, this bit I no like, and Lee and I are off down there this afternoon to see her before she has to have it x Its rather a big op that has 30 big wig Dr's involved and could get bigger depending what they find once in there ....to say my knees are knocking is an understatement and I cant imagine what she is thinking/going through right now:-(!!
I obviously have a personal reason for jumping on the ME band wagon, due to also being a ME sufferer - it was confirmed that I have had this since my child hood from a virus. Those that know me from school, you will probably remember that I was a serial part timer due to illness sickness - I was always on antibiotics. Those of you who have known me from a working perspective - also know that My attendance was a joke, I'm not under any illusion, I worked hard but I was always off ill and again on anti biotics.
December 2009 is when my life truly fell apart due to this illness - and July 2010 is when I was officially diagnosed after all them years. Unfortunately many doctors do not know anything about treating this illness and it does go undetected and fobbed off as to being many other illnesses.
My symptoms were - IBS - swollen tummy crippling pains, Asthma, Eczema, debilitating Fatigue, swollen glands around the body and painful nodes in my throat and cold and flu symptoms, heart palpitations, restless leg syndrome, anxiety, pale complexion with dark rings around my eyes, Candida, Coeliac disease, Lactose intolerant, deficiency in vitamins and mineral.
I have dealt with my ME with - Diet - a massive change avoiding sugar and processed as much as possible, Supplements, avoidance of certain foods and daily used chemicals and toxins, counselling, Meditation, and Pacing.
I am not perfect and fall of the wagon but I am determined and get straight back on the horse again and can say I'm feeling so much better, and its hard work but anything worth achieving in life is, so therefore I stick at it x
I'm not ashamed of this Illness although the stigma surrounding it is cruel - I hope people will educate them selves on the importance of food they put into there mouths and toxic products they use on there body - and I hope ME will be better understood and treated correctly, instead of saying exercise will fix it bollocks mate it makes it worse!!
This is what I posted today on facebook and Twitter, I feel I have freed myself by opening up to friends and family about my journey with this illness.
I really don't care what anyone thinks in a judgement way I have made a few people more aware - and if everyone did this there would be a better understanding of the illness, I would hope anyways. It feels good and I am happy with the way my life is going x
Last night me and Lee had a huge heart to heart about how we are coping with all the new stuff and old stuff going on in our lives, this really cleared the air and helps to see our way forward in the situation. It helps us to understand what we have said, for instance a sentence may annoy the other person and be missing a whole lot of explanation out of it, when you explain the meaning behind what you are saying no to or yes to they can begin to see the whole picture to make a decision, rather then dismissing it immediately without thought or understanding.
Mum has to go into hospital today for an operation tomorrow, this bit I no like, and Lee and I are off down there this afternoon to see her before she has to have it x Its rather a big op that has 30 big wig Dr's involved and could get bigger depending what they find once in there ....to say my knees are knocking is an understatement and I cant imagine what she is thinking/going through right now:-(!!
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