Thursday, 28 April 2011

Never give up on yourself - were there is a will there is a way - writing yourself off gets you no where!!

Yesterday was  a strange day to say the least!! I had a friend come to me regarding diet for a young man who is suffering with PKU disorder.  I went into over driver on this one, as this is a rare disorder which is so very sad.  Most sufferers have mental issues and some levels of special care required to function some form of relatively normal life, although others who have done the correct diet have gone on to do degrees.  I believe we have natural growing ingredients which can help the body fight, balance and regulate issues in the body, aiding the medical industry as such.  To  me the diet for a PKU sufferer, which is a low protein diet, is harder then it sounds as it is found in high amounts in most foods, its a amino acid within the protein that causes the trouble and although it is still required for healthy function and growth must be limited stopping dangerous levels affecting the brain. But it is required!! and therefore a sufferer really needs to be on a formula to make sure the body is receiving nutrients and the other safe amino compounds required to function at all.  Products are available in some areas, or used to be available to sufferers via prescription, as we are all aware the NHS funds are very short at the present time - do I blame Mr Cameron, No I don't as forgive me if I'm wrong but didn't the past inchargers fuck up our countries financial state of affairs by dishing out money willy nilly instead of to the necessary sick elderly and services required.  In our own lives when money is tight we tighten our belts to help it stabilise then re grow and let us have funds again and this is what our new gov is trying to do - unfortunately it is stinging us and they are taking the flack for it ....I can be hard on the NHS due to some of there choice but mainly as always it come down to funding. 

The Low protein Pasta, bread, and other required products can knock the sufferer back £7- £38 per item so many are living on junk, which is ensuring high levels of Phenylalanine into the blood leading to disastrous consequences.  Learning will be slow, knowing what is right and wrong will not be recognised, mood swings and attacks on loved ones or strangers and general unsociable behaviour - is this there fault - No - this is illness.  This means a lot of sufferers will be deemed unfit for work and having to look for help via the government and this will not pay for the products needed to keep healthy, as if they were on the correct diet and supported I believe they could work and have normal lives as I have read stories and seen evidence of sufferers leading a life like you and myself.

Although some may be counted upon the grams of protein so not to go over recommended daily amounts, Vegetables and fruit can be used in meals in amazing tastetastic dishes!!spices and herbs are good for the body and make most meals taste super amazing.  Some foods are called free foods so the idea is to have that as your main bulk then adding in a small amount of high quality protein as per your specialist or doctors daily allowance recommendation.

Some Ideas but must stress checking levels with your doc and spec, and counting as you go a little bit of effort can bring so many rewards to you.

A small bowl of cornflakes with rice milk - fried courgettes mushrooms tomatoes and onions - low protein flour pancakes - cantaloupe melon - oats with rice milk

curry - coconut milk tinned from tesco, turmeric and garlic, tin of chopped tomatoes or fresh - onions - mushrooms - peas

small portion of rice or jacket potato - sweet potato

Chili veg - can of chopped tomatoes - mushrooms - onions - broccoli - french beans - chili powder,garlic, mixed herbs - grated carrot - peas

fajitas veg - can of chopped tomatoes - spoon of cumin, cayenne chili pepper, onion powder, garlic, paprika - mixed - fry in a pan peppers mushrooms onions grated carrot peas to saute then add the mix to it and cook - this is lovely each will go with sides

Butternut squash fries - chop into fry shapes and coat with olive oil and sprinkle cumin and cayenne chili over them and over roast

water helps the body

fruit for snack although banana should be halved and split over two days
If the levels in the head can be balanced via diet then the brain in theory should function close to normal in my opinion.

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